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Analyzing the Parkinson's disease clinical trial pipeline to facilitate patient collaboration in research.

​​PDTrialTracker.info

There are many organizations focused on research, advocacy, care and support for the Parkinson's community.  These include non-profit foundations, medical and research centers, government agencies, and regional support groups. Each has its own special focus, but all share the common goals of improving the lives of those affected by Parkinson's disease and someday finding a cure.

NEWSLETTERS and BLOGS
Parkinson's News Today
www.parkinsonsnewstoday.com

PMD Alliance maintains a list of Parkinson's blogs at:
www.pmdalliance.org/resources-national-regional-local-resources-national/ 

COMPLEMENTARY THERAPY PROGRAMS  
PWR!Moves® PD-specific exercise program developed to retrain and maintain skilled movement.  The program focuses on moves that can be performed in a sitting, standing or floor position, 
www.pwr4life.org

Dance for PD®  Dance for PD classes allow people with Parkinson’s to creatively address symptom-specific concerns related to balance, cognition, motor skill, depression and physical confidence through dance.
danceforparkinsons.org

Rock Steady Boxing is designed to improve the quality of life for people battling Parkinson's disease through non-contact, boxing-inspired fitness training. 
www.rocksteadyboxing.org

LSVT Global has developed movement therapy (LSVT BIG®) and speech therapy (LSVT LOUD®) programs for people with Parkinson's disease. 
LSVTGlobal.com

Parkinson Voice Project is dedicated to helping people with Parkinson's regain and maintain their voices through the SPEAK OUT and LOUD CROWD voice therapy programs. 
www.parkinsonvoiceproject.org

PMD Alliance maintains a list of wellness programs by U.S. state at:  www.pmdalliance.org/exercise-groups/

SUPPORT GROUPS
PMD Alliance maintains a list of support groups by U.S. state at:
www.pmdalliance.org/support-groups/ 

​CAREGIVER RESOURCES
AARP Caregiving Resource Center
www.aarp.org/home-family/caregiving

Family Caregiver Alliance 
caregiver.org provides information and resources for family caregivers.

Caring.com​ is an online destination for those seeking information and support as they care for aging parents, spouses, and other loved ones.

Caregiver.com is a provider of information, support and guidance for family and professional caregivers. 

Caregiver Action Network (www.caregiveraction.org) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

National Alliance for Caregiving (www.caregiving.org) is a non-profit coalition focused on improving the lives of caregivers and their families through research, innovation and advocacy.

ATYPICAL PARKINSONISM (PSP, CBD, MSA, LBD)
CurePSP - Foundation for PSP | CBD and Related Brain Diseases
www.psp.org

Lewy Body Dementia Association 
www.lbda.org

Brain Support Network
brainsupportnetwork.org

NATIONAL/INTERNATIONAL NON-PROFITS
The Michael J. Fox Foundation for Parkinson's Research (MJFF)
www.michaeljfox.org   phone: 1-800-708-7644
Focus: research funding, education, advocacy and public policy
Note: In June 2016, the Parkinson's Action Network (PAN) was integrated into MJFF.

Parkinson's Foundation
www.parkinson.org     phone: 1-800-4PD-INFO (473-4636)
Focus:  education/care programs, research funding
Note: In August 2016, National Parkinson's Foundation (NPF) and Parkinson's Disease Foundation (PDF) merged to become the Parkinson's Foundation.

American Parkinson Disease Association (APDA)
www.apdaparkinson.org    phone:  1-800-223-2732
Focus:  education/care programs, research funding

Davis Phinney Foundation
www.davisphinneyfoundation.org
Focus:  education/care programs

Brian Grant Foundation
briangrant.org
Focus: exercise, nutrition, support

The Parkinson Alliance
www.parkinsonalliance.org
Focus:  research funding

Parkinson's UK
www.parkinsons.org.uk
Focus:  support, research, public policy

The Cure Parkinson's Trust
www.cureparkinsons.org.uk
Focus:  research funding

European Parkinson's Disease Association
www.epda.eu.com
Focus:  education, care, awareness

World Parkinson Coalition
www.worldpdcoalition.org
Focus:  collaboration between researchers, clinicians, patients

MEDICAL AND RESEARCH CENTERS
National Institute of Neurological Disorders and Stroke (NINDS) at the National Institutes of Health (NIH)
www.ninds.nih.gov/disorders/parkinsons_disease

Morris K. Udall Parkinson's Disease Research Centers of Excellence             
www.ninds.nih.gov/research/parkinsonsweb/udall_centers

Parkinson's Foundation Centers of Excellence
www.parkinson.org/expert-care-research/centers-of-excellence/listing

U.S. Dept. of Veterans Affairs Parkinson's Disease Research, Education, and Clinical Centers (PADRECCS)
www.parkinsons.va.gov/new_front_page.asp

Parkinson's Study Group (PSG)
www.parkinson-study-group.org
Non-profit scientific network of Parkinson centers in North America. map of PSG-credentialed clinical trial sites.

CLINICAL TRIALS
ClinicalTrials.gov - clinical trial registry and search tool supported by the U.S. National Institutes of Health

FoxTrialFinder.org - clinical trial search tool provided by The Michael J. Fox Foundation

​PDTrialTracker.info - overview of PD clinical trials registered on ClinicalTrials.gov

RESOURCE DIRECTORY